Attitudes

Publications examining the attitudes of researchers, consumers and community members to different aspects of involvement.
 
Packer C. Can a health professional represent patient views? International Journal of Technology Assessment in Health Care 2011;27(4):400-403
 
Horowitz CR, Robinson M, Seifer S. Community-based participatory research from the margin to the mainstream: Are researchers prepared? Circulation 2009;119:2633-2642
 

Thompson J, Barber J, Ward PR, Boote JD, Cooper CL, Armitage CJ, Jones H. Health researchers’ attitudes towards public involvement in health research. Health Expectations 2009;12:209–220

 

Measuring and reporting

Articles exploring how consumer and community involvement can be measured, reported and reviewed.
 
Boote J, Baird W, Sutton A. Public involvement in the systematic review process in health and social care: A narrative review of case examples. Health Policy 2011:102:105–116
 
Moran R, Davidson P. An uneven spread: A review of public involvement in the National Institute of Health Research’s Health Technology Assessment program. International Journal of Technology Assessment in Health Care 2011;27(4):343-347
 
Purtell RA, Wyatt KM. Measuring something real and useful in consumer involvement in health and social care research. International Journal of Consumer Studies 2011;35:605-608
 
Staniszewska S, Brett J, Mockford C, Barber R. The GRIPP checklist: Strengthening the quality of patient and public involvement reporting in research. International Journal of Technology Assessment in Health Care 2011;27(4):391-399
 

Wilson C. Editorial. Measuring consumer involvement in health and social care: Dividing fact from fiction. International Journal of Consumer Studies 2011;35:603-604

Impact

Understanding, measuring and evaluating the impact that consumer and community involvement has on research.
 
Staley K, Buckland S, Hayes H, Tarpey M. ‘The missing links’: understanding how context and mechanism influence the impact of public involvement in research. Health Expectations 2014 Dec;17(6):755-64. doi: 10.1111/hex.12017. Epub Oct 29 2012.
 
Barber R, Beresford P, Boote J, Cooper C, Faulkner A. Evaluating the impact of service user involvement on research: a prospective study. International Journal of Consumer Studies 2011;35:609-615
 
Barber R, Boote JD, Parry GD, Cooper CL, Yeeles P, Cook S. Can the impact of public involvement on research be evaluated? A mixed methods study. Health Expectations 2012;15(3):229-241
 
Payne JM, D’Antoine HA, France KE, McKenzie AE, Henley N, Bartu AE, Elliott EJ, Bower C. Collaborating with consumer and community representatives in health and medical research in Australia: results from an evaluation. Health Research Policy and Systems 2011;9:18
 
Staniszewska S, Adebajo A, Barber R, Beresford P, Brady LM, Brett J, Elliott J, Evans D, Haywood KL, Jones D, Mockford C, Nettle M, Rose D and Williamson T. Developing the evidence base of patient and public involvement in health and social care research: the case for measuring impact. International Journal of Consumer Studies 2011;35:628–632
 
Wyatt K, Carter M, Mahtani V, Barnard A, Hawton A. & Britten N. The impact of consumer involvement in research: An evaluation of consumer involvement in the London Primary Care Studies Programme. Family Practice 2008;25(3):154-161
 
Staniszewska S, Herron-Marx S, Mockford C. Measuring the impact of patient and public involvement: the need for an evidence base. International Journal for Quality in Health Care 2008;20(6):373-374
 
Fudge N, Wolfe CDA, McKevitt C. Involving older people in health research. Age and Ageing 2007;36:492-500
 
Staley. K Exploring Impact: Public involvement in NHS, public health and social care research. INVOLVE, Eastleigh 2009

The benefits

The benefits of consumer and community involvement for driving changes in policy and practice.
 
O’Brien MJ, Whitaker RC. The role of community-based participatory research to inform local health policy: A case study. Journal of General Internal Medicine 2011;26(12):1498-1501 
 
Kirwan JR, Newman S, Tugwell PS, Wells GA. Patient perspective on outcomes in rheumatology - A position paper for OMERACT 9. Journal of Rheumatology 2009; 36(9):2067-2070
 
Cook WK. Integrating research and action: a systematic review of community-based participatory research to address health disparities in environmental and occupational health in the USA. BMJ Epidemiology and Community Health 2008;62:668–676
 
Beresford P. User involvement, research and health inequalities: developing new directions. Health and Social Care in the Community 2007;15(4):306–312
 
Krieger J, Allen C, Cheadle A, Ciske S, Schier JK, Senturia K, Sullivan M. Using community-based participatory research to address social determinants of health: Lessons learned from Seattle Partners for Healthy Communities. Health Education & Behaviour 2002;29(3):361-382
 
Integrating research with action to improve health disparities

Schulz AJ, Israel BA, Parker EA, Lockett M, Hill Y, Willis R. The East Side Village Health Worker Partnership: Integrating research with action to reduce disabilities. Public Health Reports 2001;116:548-557