We work with consumers, community members and service providers to identify their priorities for research. The process that we use is based on the Priority Setting Partnership developed by the James Lind Alliance. Once identified the priority areas will be listed and accessible to researchers ensuring that their research meets the needs of the community.

Fetal Alcohol Spectrum Disorder

The Fetal Alcohol Spectrum Disorder Research Australia Centre for Research Excellence  is a national research program that aims to reduce the effects of alcohol use during pregnancy by: supporting families to reduce or stop alcohol use in pregnancy; increasing awareness of Fetal Alcohol Spectrum Disorder; finding effective treatment; and improving access to services for children with Fetal Alcohol Spectrum Disorder and their families.

Understanding the research priorities of different stakeholders in the area of Fetal Alcohol Spectrum Disorder; will assist in informing future research and will ensure research undertaken is community relevant, which will, in turn facilitate interventions and policies that are relevant, useful and effective.

The aims of this project are to address this by:

  1. Conducting a survey to identify themes and topics of interest for future research considered important by community members including those who are/have been affected by Fetal Alcohol Spectrum Disorder;, specifically around two streams: 1. Prevention of Fetal Alcohol Spectrum Disorder; and 2. Diagnosis and treatment of Fetal Alcohol Spectrum Disorder;.
  2. Analysing the results from the online survey to develop themes and topics that the community have identified as important to them
  3. Distributing a second online survey with the identified themes and topics from the initial survey to rank the order of importance – the top 30 themes and topics will be used to develop a list of research themes/topics to inform and be discussed, added to and prioritised at a consensus workshop
  4. Holding a one-day consensus workshop, informed by the above-mentioned list to develop ten community priorities for the Prevention and Diagnosis and Treatment streams that will be used to inform future research

For more information about being a part of this project please see the Participant Information Sheet here

You can be part of this priority setting partnership by completeing our survey here. 

 

The Family and domestic violence community priority setting for research project

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Our aim of the project was to:

  • identify the issues and questions that consumers and community members consider are important about family and domestic violence
  • develop a list of community priorities that will be used to inform future research in this area
  • ensure that people who have experienced family and domestic violence are included in the development of priorities for research in this area

We are not sure what is really effective in preventing and supporting people who have experienced family and domestic violence. Identifying research priorties in this area will help funding agencies to direct their limited funds to research that is likely to have the most impact and importance to the community.

The project consisted of a survey to identify the issues and questions important to people who have experienced family and domestic violence and those that support them.

The survey was followed up by a workshop to prioritise the issues and questions identified.

You can find out more about the process and view the list of top ten priorities in our report.

The definition for “family and domestic violence” is considered to be behaviour which results in physical, sexual or psychological damage, forced social isolation, economic deprivation, or behaviour which causes the victim to live in fear.