Familial Hypercholesterolaemia Community Conversation

A community conversation on primary care research in Familial Hypercholesterolaemia  (FH) was held by researchers from the University of Notre Dame and the Consumer and Community Health Research Network. Amoung the fourteen participants who attended were members of the FH Support Group and FH Australasia Network.

Purpose

Researchers had specific queries they wanted to put to the community including how to raise awareness of familial hypercholesterolaemia, following a diagnosis what is the best way to contact family members and what information needs to be given.

Comments from consumers

"Being able to share my ideas and listening to others"

"Assisting with getting better community awareness out there"

Read the full report here