Our publications

Publications that have been written by or in collaboration with the Consumer and Community Health Research Network at The University of Western Australia's School of Population Health and the Telethon Kids Institute.

Fisher C., McKenzie A., Preen D., Crowe S., Cooke V., Glauert R., O’Donnell M., Adams I., West M., Smith S., Harrison H., Nguyen R., Henning L., McNeil N., Frank
B. Family and Domestic Violence Priority Setting Partnership Project Report. The University of Western Australia School of Population Health, Telethon Kids Institute, Kulunga Aboriginal Research Development Unit, Consumer and Community Health Research Network, Anglicare WA and Crowe Associates 2016
 
The Barriers Report
McKenzie A., Bulsara C., Haines H., Hanley B., Alpers K. Barriers to community involvement in health and medical research - Researchers perspectives on consumer and community involvement in research: a qualitative study. The University of Western Australia School of Population Health, Telethon Kids Institute and The University of Notre Dame, Perth 2016. ISBN 978-0-9872783-5-7
 
The Program Report
McKenzie A., Alpers K. Consumer and Community Participation Program Report on Activities1998-2014. The University of Western Australia School of Population Health and Telethon Kids Institute, Perth 2015. ISBN 978-0-9872783-4-0
 
McKenzie A., Hanley R. Planning for Consumer and Community Participation in Health and Medical Research: A practical guide for health and
medical researchers. The University of Western Australia and the Telethon Institute for Child Health Research, Perth 2014. ISBN 978-0-9872783-3-3
 
McKenzie A, Haines H. Consumer and Community Participation Fact Sheet Series. The University of Western Australia and the Telethon Institute for Child Health Research, Perth 2011. ISBN 978-0-9872783-2-6
 
McKenzie A, Hanley B. Consumer and Community Participation in Health and Medical Research: A practical guide for health and medical research organisations. The University of Western Australia and the Telethon Institute for Child Health Research, Perth. February 2012, second print, ISBN 978-0-9872783-0-2
 

Academic Journals

Bulsara C E, Cuesta Briand B, McKenzie A, Moorin R. Communication factors impacting on the ability of a family following a catastrophic injury in Western Australia. Nursing and Palliative Care, 2016, DOI:10.15761/NPC.1000134 Volume 1(6): 5-6

McKenzie  A, Alpers  K, Heyworth  J, Phuong  C, Hanley  B. Consumer and community involvement in health and medical research: evaluation by online survey of Australian training workshops for researchers. Research Involvement and Engagement, 2016, 2:16, DOI: 10.1186/s40900-016-0030-2

Tong A, Crowe S, Chando S, Cass A, Chadban SJ, Chapman JR, Gallagher M, Hawley CM, Hill S, Howard K, Johnson DW, Kerr PG, McKenzie A, Parker D, Perkovic V, Polkinghorne KR, Pollock C, Strippoli GFM, Tugwell P, Walker RG, Webster AC, Wong G, 
Craig JC. Research Priorities in CKD: Report of a National Workshop Conducted in Australia. American Journal of Kidney Diseases, 2015, 66, 2, pp. 212-222.
 
Jones HM, McKenzie A, Miers S, Russell E, Watkins RE, Payne JM, Hayes l, Carter M, D’Antoine H, Latimer J, Wilkins A, Mutch RC, Burns L, Fitzpatrick JP, Halliday J, O’Leary CM, Peadon E, Elliott EJ, Bower C. Involving consumers and the community in the development of a diagnostic instrument for fetal alcohol spectrum disorders in Australia. Health Research Policy and Systems 2013;11:26
 
Bower C, McKenzie A, Watson L, Charles A. Collaborating with consumers: the key to achieving statutory notification for birth defects and cerebral palsy in Western Australia. Journal of Registry Management 2013;40:1
 
Payne JM, D’Antoine HA, France KE, McKenzie AE, Henley N, Bartu AE, Elliott EJ, Bower C. Collaborating with consumer and community representatives in health and medical research in Australia: results from an evaluation. Health Research Policy and Systems 2011;9:18
 
Watkins RE, Elliott EJ, Mutch RC, Payne JM, Jones HM, Latimer J, Russell E, Fitzpatrick JP, Hayes L, Burns L, Halliday J, D'Antoine HA, Wilkins A, Peadon E, Miers S, Carter M, O'Leary CM, McKenzie A, Bower C. Consensus diagnostic criteria for fetal alcohol spectrum disorders in Australia: a modified Delphi study. BMJ Open 2012 Oct 25;2(5). doi:pii: e001918. 10.1136
 
Watkins RE, Elliott EJ, Mutch RC, Latimer J, Wilkins A, Payne JM, Jones HM, Miers S, Peadon E, McKenzie A, D'Antoine HA, Russell E, Fitzpatrick J, O'Leary CM, Halliday J, Hayes L, Burns L, Carter M, Bower C. Health professionals’ perceptions about the adoption of existing guidelines for the diagnosis of fetal alcohol spectrum disorders in Australia. BMC Pediatrics 2012 Jun 14;12(1):69
 
Bulsara CE, McKenzie A, Sanfilippo F, Holman CDJ, Emery J. ‘Not the full Monty’: a qualitative study of seniors’ perceptions of generic medicines in Western Australia. Australian Journal of Primary Health 2010;16:240–245
 
Emery J, McKenzie A, Bulsara CE, Holman CDJ. Next goal: consistency of packaging and labelling. BMJ 2010;341:64 
 
Bulsara CE, McKenzie A. The quality of medication information in Australia: the need for more clinical expertise and accountability. Medical Journal of Australia 2009;191(3):189
 
McKenzie A, Wale J, McLure K, Hill I, Rumley H, Colbung M, Daniels B, Powell L, Cuesta-Briand B. Response to ‘A survey of suppression of public health information by Australian governments’ Australian And New Zealand Journal Of Public Health 2008;32(1):90
 
 

Other Publications

 
National Breast Cancer Foundation McKenzie A. From Applications To Outcomes. Consumer and community participation in health and medical research: A resource for researchers and consumer. National Breast Cancer Foundation, Sydney 2014
 
McKenzie A. University of Western Australia Consumer and Community Participation Program. INVOLVE Newsletter Spring 2013
 
Kemp A. Would automating the PBS Safety Net help to address consumers’ out of pocket costs? Health Voices, the Journal of the Consumers Health Forum of Australia 2013;12:29-30
 
McKenzie A. Consumer stories about labelling. Australian Prescriber 2011;34(5):138
 
McKenzie A. Instructions: an essential component of medication safety. Health Voices, the Journal of the Consumers Health Forum of Australia 2011;9:13-14
 
McKenzie A. Consumer and community participation in health research. Health Voices, the Journal of the Consumers Health Forum of Australia 2011;8:19-20
 
McKenzie A. Seniors have a say in research on medication safety. Health Matters, newsletter of the Health Consumers’ Council WA 2010;81:45-47