Australian Respiratory Early Surveillance Team for Cystic Fibrosis (ARREST CF)

More commonly known as AREST CF. The AREST CF team is a collaboration of specialist paediatric cystic fibrosis centres in Perth and Melbourne. Our team consists of over 60 doctors, researchers, scientists, research management and students dedicated to the improvement of respiratory health and outcomes in children with cystic fibrosis.

Expressions of interest are being invited from consumers or carers for both our Child and Adolescent Cystic Fibrosis Consumer Reference Group of WA and our Scientific Management Committee.

 

We run a unique program aimed specifically at children under the age of seven years called The Early Surveillance Program. The program focuses on the assessment, treatment and prevention of cystic fibrosis lung disease in young children.  By preventing lung disease early in life we believe that individuals with cystic fibrosis will live longer fulfilling lives.

More recently we began clinical trials that are conducted in paediatric hospitals across Australia and New Zealand and you can find information about those clinical trials at this website as well.

Join our Consumer Reference Group or Scientific Management Committee.

Expressions of interest are being invited for both our Child and Adolescent Cystic Fibrosis Consumer Reference Group of WA and our Scientific Management Committee.

Child and Adolescent Cystic Fibrosis Consumer Reference Group of WA

We are looking for an additional 6 members to join the Child and Adolescent Cystic Fibrosis Consumer Reference Group of WA. It is a formalized group of parents and patients with cystic fibrosis brought together to:

  • Support the development of partnerships between consumers, researchers, research organizations and clinical staff.
  • Provide a consumer perspective to both clinical and research aspects of cystic fibrosis.
  • Advise about research and clinical priorities, practice and policies.
  • Enhance the quality and relevance of research and clinical activities through consumer participation.

Join our Scientific Management Committee

We are also looking for 2 members to join our Scientific Management Committee. The role of this Committee is to implement the research priorities of the AREST CF collaboration through activities such as:

  • Progress review of current projects, including the Early Surveillance Program.
  • Review and approval of new projects, collaborations and Chief Investigators.
  • Review and approval of requests for access to AREST CF biological samples/data.
  • Progress review of research outputs, including publications, conference presentations and grant applications.
  • Monitor and align research efforts to ensure research will lead to meaningful benefits for patients in clinical practice.

For more information or to express an interest in joining either of these groups please visit the AREST CF website