Infectious Disease Community Reference Group

The Infectious Diseases Community Reference Group for the Wesfarmers Centre of Vaccines and Infectious Diseases is looking for new members.

Most of the Centre’s infectious diseases work focuses on ear health and lung infections in Aboriginal and non-Aboriginal children; skin infections and rheumatic heart disease in Aboriginal children; approaches to improve parents’ knowledge of childhood vaccinations; better ways to monitor and improve the safety and efficacy of childhood vaccines; and studies on the safety and efficacy to vaccinate or give probiotics in pregnancy to prevent serious maternal and early childhood infections.

Background

An Infectious Diseases Community Reference Group was established at the Telethon Kids Institute in 2007 to inform the wider community about infectious disease research and for community members to provide valuable input. The Infectious Diseases Community Reference Group is now part of the newly formed Wesfarmers Centre of Vaccines and Infectious Diseases.

The group consists of Aboriginal and non-Aboriginal community members from the metropolitan area and Kalgoorlie, and representatives from the Western Australian Department of Health, the Institute’s Wesfarmers Centre of Vaccines and Infectious Diseases, Aboriginal Research Development,  and Consumer and Community Advisory Council.

Most of the Centre’s  infectious diseases work focuses on ear health and lung infections in Aboriginal and non-Aboriginal children; skin infections and rheumatic heart disease in Aboriginal children; approaches to improve parents’ knowledge of childhood vaccinations; better ways to monitor and improve the safety and efficacy of childhood vaccines; and studies on the safety and efficacy to vaccinate or give probiotics in pregnancy to prevent serious maternal and early childhood infections.

What is the purpose of this committee?

The committee provides a community perspective on activities relating to infectious disease research at the Telethon Kids Institute. The committee also;

  • Identifies gaps and priorities for vaccines and infectious disease research at the Institute to ensure we are responsive to the needs of the community
  • Provides input into ways to inform the wider community, particularly those most affected, about vaccine and infectious disease research
  • Has an advocacy role in matters related to infectious disease research

What is expected of committee members?

No prior skills are required. Vaccines and infectious diseases affect everyone so we are looking for:

  • parents (and future parents)
  • grandparents
  • men and women of all ages
  • people from metropolitan and remote areas
  • Aboriginal and non-Aboriginal community members

The committee meets four times per year, usually on Thursday mornings between 9:30 – 11:30 am at the Telethon Kids Institute in Subiaco.

It is not a problem to bring your children or grandchildren to the meeting.

How long am I expected to be involved?

Members are asked to sign up for a 2 year term initially.

Where will meetings be held?

Meetings are held at the Telethon Kids Institute, 100 Roberts Rd, Subiaco WA.

For people living in non-metropolitan areas who are unable to travel to Subiaco, there is the possibility to call in and follow the meeting over the phone.

We are currently also exploring the establishment of a virtual reference group. If you would like to be considered for this group once it is established please let us know.

What expenses are offered?

Community members will receive a participation payment of $25 per meeting attended.