Developmental Pathways Project Community Reference Group TK00086

The Developmental Pathways Project is a landmark project taking a multidisciplinary and holistic approach to investigate the pathways to health and wellbeing, education, disability, child abuse and neglect, and juvenile delinquency outcomes among Western Australian children and youth.

The purpose of the Developmental Pathways Project Consumer & Community Reference Group is to provide a community perspective on the research activities associated with the Developmental Pathways Project at the Telethon Kids Institute.

The Developmental Pathways Project is a landmark project taking a multidisciplinary and holistic approach to investigate the pathways to health and wellbeing, education, disability, child abuse and neglect, and juvenile delinquency outcomes among Western Australian children and youth.

The project has established the process of linking together de-identified longitudinal (long-term) population-based data collected and stored by a large number of WA government departments and the Telethon Kids Institute, to create a cost-effective research and policy planning and evaluation resource.

Purpose of the Reference Group

The purpose of the Developmental Pathways Project Consumer & Community Reference Group is to provide a community perspective on the research activities associated with the Developmental Pathways Project at the Telethon Kids Institute.

The Terms of Reference state that the group will:

  • Provide a community perspective on activities associated with the project
  • Build an understanding of community perspectives that the linked data may be about private and sensitive issues that represent people’s stories and lives
  • Provide advice regarding the interpretation of findings and results
  • Provide input into the development of information and dissemination strategies to inform the wider community about the researchof the Developmental Pathways Project, including input into briefing papers for Director Generals
  • Receive information regarding the impact of the research and its translation
  • Provide input into the development of ideas and priorities for future research projects
  • Provide an advocacy role for data linkage when needed

What is the membership of the Reference Group?

Membership of the Community Reference Group includes:

  • Up to 16 community members who provide a community perspective to the Developmental Pathways Project
  • The Developmental Pathways Program Manager
  • A researcher from the Developmental Pathways Project
  • A Developmental Pathways Project team member
  • 2 staff from the Consumer and Community Involvemnet Program

Additional members may be co-opted as required.

What is expected of reference group members?

  • Good links to the community specifically organisations with a focus on health and wellbeing, education, disability, child abuse and neglect, and juvenile delinquency 
  • Have an interest in, or experience of child health and wellbeing
  • Respect and adhere to confidentiality requirements
  • Respectthe views of all other members
  • It is desirable that applicants can demonstrate:
    • Their understanding of consumer and community involvement in research
    • Committee experience

When are meetings held?

Meetings are held four times per year on over lunch 12noon - 2pm (meeting days are made to suit members).

How long am I expected to be involved?

Minimum 2 year term.

Where will meetings be held?

Telethon Kids Institute. Roberts Road, Subiaco, WA

What expenses are offered?

Out-of-pocket expenses are covered

"The value of having community perspectives on our work is immeasurable, and will only be truly seen once our work has been completed and disseminated. We look forward to a long and fruitful relationship with our reference group" Dr Rebecca Glauert, Program Manager