Chronic Diseases of Childhood Research Focus Area Steering Committee REF TK00064

Are you interested in chronic disease, development and well-being in children? Would you like to help researchers understand these conditions and focus on better ways of diagnosing, treating and controlling childhood diseases? Applications are now open to join the Chronic Diseases of Childhood Steering Committee at Telethon Kids Institute.

About Research Focus Areas

Research Focus Areas are collaborative networks that bring together Telethon Kids Institute researchers with external researchers, health services and consumers to ensure our research is translated into real outcomes for children. There are four Research Focus Areas at Telethon Kids Institute:

  • The Early Environment
  • Chronic Diseases of Childhood
  • Brain and Behaviour
  • Aboriginal Health

We are also looking for people to join the Steering Committees for Early Environment and Brain and Behaviour.

About the Chronic Diseases of Childhood Research Focus Area

Chronic diseases (such as childhood cancers, diabetes, lung and heart disease) in children is devastating and often life threatening. In order to prevent and provide effective treatments, a better understanding of the relationships between genetics (the properties of an organism) and environmental causes is required. There also needs to be a focus on better ways of diagnosing, treating and controlling the disease on a more individual and community level.

About the Position

  • To provide a consumer and community perspective to the Chronic Diseases of Childhood Research Focus Area Steering Committee
  • To work together to make decisions about research priorities, practice and policies
  • As a Steering Committee member you will also be required to become a member of the Telethon Kids Institute Community Advisory Group 

Read more about the Community Advisory Group

What am I expected to do?

  • Attend Research Focus Area Steering Committee meetings
  • Participate in activities of the committee
  • Provide a consumer and community perspective and advice on all of the Steering Committees activities
  • Provide advice and expertise relating to consumer and community priorities and perspectives on research
  • Provide access to relevant community networks
  • Provide input into reporting of consumer and community involvement activities
  • Attend the Community Advisory Group Meetings and provide updates

What skills or experience do I need?

  • Links to the community
  • Ability to contribute at a strategic level on a committee
  • Have an interest in, or experience of child health and wellbeing
  • Respect and adhere to confidentiality requirements
  • Respect the views of all other members
  • It is desirable that applicants can demonstrate:
    • Understanding of consumer and community involvement in research
    • Committee experience

What is the time commitment?

Two years, it is anticipated that you will meet a minimum of six times per year for the Steering Committee and four times a year for the Community Advisory Group. Each meeting will be approximately 1.5 – 2 hours.

Where will meetings be held?

Telethon Kids Institute. Roberts Road, Subiaco WA.

What support is offered?

Honorariums for each meeting attended. Free training and mentoring is offered by the Consumer and Community Health Research Network. 

Applications close 31st January 2017