Management of cancer-related fluid in the chest Consumer Reference Group REF SC00087

Researchers at Sir Charles Gairdner Hospital want to improve patient care and the quality of life in people affected by cancer related fluid on the lungs. They are looking for people who are affected by Malignant Pleural Effusion or have a personal connection to someone with this condition to join a Community Reference Group.

Applications close: Friday 12th May, 2017

About the project

Malignant Pleural Effusion is the collection of fluid between the outside of the lungs and the chest wall, a secondary effect of many cancers.  Malignant Pleural Effusion can cause debilitating breathlessness in many people and for the majority the removal of the fluid is needed to improve their quality of life. Malignant Pleural Effusion is common affecting over 8,000 people every year in Australia and New Zealand.

This project is working on improving patient care and quality of life by identifying areas of research for the management and treatment of Malignant Pleural Effusion.

About the position

We are looking for:

10 – 12 Consumers/community members.  Those who either have malignant pleural effusion or are family or carers of people who have had a malignant pleural effusion.

What am I expected to do?

Consumer Reference Group members will:

  • Provide a community perspective on the research
  • Provide ideas on areas for future research
  • Participate in activities of the reference group

What skills or experience do I need?

  • Have Malignant Pleural Effusion or are a family member or carer of someone with this condition
  • You will need to be able to attend meetings

What is the time commitment?

Two years, starting from May 2017. Two meetings per year.

Where are meetings held?

Harry Perkins Building, QEII Medical Centre, Nedlands

What support is offered?

$30 per hour of meeting. Free training and mentoring is offered by the Consumer and Community Health Research Network.

Applications close: Friday 12th May, 2017