Perth Childrens Hospital Emergency Department Consumer Reference Group

Has your child attended a hospital emergency department for asthma, bronchiolitis, pneumonia, Bell’s Palsy, a head or neck injury (including concussion), seizures or a lower leg fracture in the past 3 years?

Researchers at the Perth Children’s Hospital Emergency Department are looking for 8 parents or carers to be a part of an exciting new Consumer Reference Group.

If you have experience of attending an emergency department at a children’s hospital, your help is needed!

Applications close: Friday 1st February, 2019

About the project

Research in the Perth Children’s Hospital Emergency Department aims to improve the medical management of a range of conditions, as well as the care received in the emergency department.

Emergency Department researchers currently have a range of studies they are running or planning, which include:

  • Identifying the best ways to treat fractures in toddlers
  • Identifying the best ways to administer oxygen to children with breathing difficulties
  • Setting up registries for children coming into the emergency department with seizures and asthma
  • Assessing the standard treatment of bronchiolitis, head injury(concussion) and Bell’s Palsy

The research team is keen to ensure that all research they do is guided by the lived experiences of parents, carers and patients.

About the Position

The Perth Children’s Hospital Emergency Department research team is looking for 8 parents or carers to join a new Consumer Reference Group.

What am I expected to do?

The Consumer Reference Group members will provide advice on a range of research activities.

Specifically, members will:

  • Provide a “lived-experience” of attending a children’s hospital emergency department and caring for a child with a specific health condition
  • Provide advice on study consent processes and the best ways to recruit participants for studies
  • Review research documents including grant applications, plain language summaries, patient information sheets and consent forms
  • Help to develop ways to inform the wider community about the department’s research
  • Provide feedback on project results and planning for future research
  • Advocate for translating study results into standard clinical practice

What skills or experience do I need?

You need to be a parent or carer of a child who has:

  • Presented to a children’s hospital emergency department in the last three years AND
  • Had any of the following conditions: a lower leg fracture, a respiratory condition which has required oxygen, seizures, asthma, bronchiolitis, head or neck injury (including concussion) or Bell’s Palsy

What is the time commitment?

The Reference Group will run for one year, commencing in February 2019. There may be opportunity to continue for a second year. The group will meet three times over the year. Each meeting will be no longer than two hours.

Members will also be required to review research documents outside of meetings. A maximum of three reviews will be required per person over the year and each review will take approximately one hour

Where will meetings be held?

Perth Children's Hospital on the Queen Elizabeth II Medical Centre site, Nedlands

What support is offered?

$30 honorarium per hour for meetings attended and any out-of-session activities. Training and support is offered by the Consumer and Community Health Research Network.

Applications close: Friday 1st February, 2019