The Healthy Strides Initiative REF PH000611

Are you the parent of a child that requires assistance with walking? Are you a young person or carer of a person that requires assistance with walking? Researchers need your help to provide input on a community based walk training program.

Applications have now closed.  

About the project

The iStride study is an intensive movement training program for children with cerebral palsy who usually require assistance to walk.

In 2014, the iStride study was launched following support from the Telethon Perth Children’s Hospital Research Fund. The program runs through Princess Margaret Hospital (PMH). iStride training is intense, occurring 3 times a week over 6 weeks with the support and supervision of 3 therapists. Results have been exciting, demonstrating improvements in walking ability (with or without walking frames), gross motor skills, respiratory health and reductions in the burden of care.

Due to the success of this program, researchers have recognised that to maintain the improvements in walking ability that these children have achieved, they need to have access to and be able to continue this type of training program in the community. The goal of the team is to establish a sustainable community-based program they have called, The Healthy Strides Initiative. This initiative will enable the treatment approach from iStride to be made available to consumers in the community over the long term. 

About the position

Researchers from Princess Margaret Hospital for Children are looking for 8 – 10 consumers and community members to join a consumer reference group. They would like to work with and gain the perspectives of consumers to understand:

  • What consumers would like from a rehabilitation program?
  • What factors help or make it difficult for people to participate in a rehabilitation program?
  • How important would a rehabilitation program be in their journey?
  • What does rehabilitation intensity look like?
  • What is already available and what do people access in the community?

What am I expected to do?

Community members will:

  • Provide a “lived- experience” perspective of being involved in a rehabilitation program
  • Provide feedback on the relevance, understanding and value of the project
  • Contribute towards identifying the best methods for developing this type of rehabilitation program
  • Participate in activities of the group
  • Be willing to answer questions as they arise throughout the project

What skills or experience do I need?

Researchers would like to involve any of the following consumer members:

  • Parent of children with physical disabilities that usually require assistance to walk
  • A young person with cerebral palsy that usually requires assistance to walk
  • Parent or young person with an acquired brain injury or spinal cord injury that has resulted in changes to their walking ability

What is the time commitment?

Three - 2 hour meetings between June 2017 to December 2017

Where will meetings be held?

Department of Paediatric Rehabilitation at Princess Margaret Hospital, Roberts Road, Subiaco, WA.

What support is offered?

A $30 honorarium per hour for meetings attended. Free training and mentoring is offered by the Consumer and Community Health Research Network.

APPLICATIONS CLOSE:  as soon as possible, but no later than Friday 2nd June 2017